“How strange: to land in the second part of your life, without even having lived its first.” – Trivarna Hariharan Life is weird. Everything is so weird all the time. I think about how weird my life is every time my dad helps me in and out of my wheelchair at the doctor’s office, andContinue reading “May 19, 2025”
Tag Archives: mecfs
February 20, 2025
“I’m in pain because the day is ending and I am somehow never healing.” – Anne Sexton My entire experience of life has been altered in the most twisted way by being ill. It’s compressing and suffocating and painful. People will be ruthless with you – with your body, with your health, with their words.Continue reading “February 20, 2025”
February 22, 2024
“I was supposed to be having the time of my life.” – Sylvia Plath I turn 25 tomorrow. It’s a milestone birthday of sorts, I guess. A quarter of a century. Something I would have considered monumental and exciting – a call for celebration. But instead of it being a joyful, celebratory day, it nowContinue reading “February 22, 2024”
October 20, 2023
“I’m searching for a phrase that will release everything that’s pent up in me.” – Henry Miller I’m so resentful of this life. I don’t even think to call this a life would be fair. I just don’t think humans were built for this kind of suffering. I wasn’t. And yet, it’s all that IContinue reading “October 20, 2023”
May 28, 2023
“I wonder if there’s a secret current that connects people who have lost something. Not in the way that everyone loses something, but in the way that undoes your life, undoes your self, so that when you look at your face it isn’t yours anymore.” – Nina LaCour Time doesn’t move the same for meContinue reading “May 28, 2023”
The Elephant in the Room 